[:en]Relevance of Canadian health care evaluation project (CANHELP) questionnaire in Assessment of Satisfaction of End of Life Care provided in patients and families receiving Home Based Palliative Care: A pilot study[:ro]Relevanța proiectului canadian de evaluare a stării de sănătate (CANHELP), chestionar de evaluare a satisfacției la sfârșitul vieții la pacienții și familiile acestora care au primit îngrijiri paliative la domiciliu: un studiu pilot[:]

[:en]Arunangshu Ghoshal, MD (a), Anuja Damani, MD (a), Naveen Salins, MD (b), MaryAnn Muckaden, MD, MSc, radiotherapy (c)

(a): resident doctor
(b): associate professor, general medicine
(c): professor and head of Radiation Oncology
(a,b,c): palliative medicine, Department of Palliative Medicine, Tata Memorial Centre, Mumbai, India

Corresponding author: Dr. Arunangshu Ghoshal: arun.bata@yahoo.com

Abstract

Introduction:
Good palliative care provision should culminate in a high quality end-of-life (EOL) care. The Canadian Health Care Evaluation Project (CANHELP) questionnaire assesses the patient and family satisfaction with provided EOL care.

Aims:
To study the relevance of the CANHELP questionnaire in patients and families enrolled in home based palliative care, to identify unmet needs of end of life care, and to bridge the gaps in care provision.

Methods:
A cross-sectional study conducted in patients and their families who are enrolled for home based palliative care with the Palliative Medicine Department. The CANHELP questionnaire is a 1-5 Likert scale assessing satisfaction of EOL care provided with 38 patient centred questions and 40 family centred questions.

Results:
Both patients and their caregivers gave highest importance to illness management (patient mean 67.63 sd 2.67, caregiver mean 45.83, sd 7.56), and expressed highest satisfaction (patient mean 58.58 sd 5.61, caregiver mean 40.33 sd 5.55). Significant differences were found in importance and satisfaction regarding illness management (p<0.001), benefit of communication and decision-making (p<0.001), well-being (p<0.001), general satisfaction of care received (p<0.001) between patients and their families. There are communication gaps regarding discussions about the use of life sustaining technologies, comfortable talking with relative about his/her illness, dying, and death and discussions with relative during the past month about wishes for future care in the event he or she is unable to make those decisions which needs to be improved.

Conclusion:
The CANHELP questionnaire is relevant to patients and their families in assessing satisfaction of EOL care services provided.

Key words: home based care, palliative care, CANHELP questionnaire, end of life care, satisfaction with care

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