{"id":4378,"date":"2023-01-20T08:56:07","date_gmt":"2023-01-20T08:56:07","guid":{"rendered":"https:\/\/www.paliatia.eu\/new\/?p=4378"},"modified":"2023-04-28T06:46:31","modified_gmt":"2023-04-28T06:46:31","slug":"innovation-and-achievements-in-palliative-care-in-europe","status":"publish","type":"post","link":"https:\/\/www.paliatia.eu\/new\/2023\/01\/innovation-and-achievements-in-palliative-care-in-europe\/","title":{"rendered":"MyPath puts cancer patients\u2019 needs and values at the forefront of their care trajectory"},"content":{"rendered":"

<\/a>MyPath puts cancer patients\u2019 needs and values at the forefront of their care trajectory<\/h2>\n

\u00a0<\/strong>In current practice in Europe, the primary focus of cancer care is to treat the tumour. However, the optimal care plan for a particular patient is also determined by factors beyond medical ones and therefore varies from person to person. Research in palliative and supportive care has demonstrated the benefits of including a patient-centred care approach, with greater involvement of the patient in decisions about their treatment. Nevertheless, this evidence has not been systematically integrated into oncology.<\/p>\n

MyPath is a new EU-funded (grant agreement no. 101057514), multi-stakeholder research project that aims to integrate patient-centred care into routine cancer care by developing innovative digital patient-centred care pathways (PCCPs), configured on a user-friendly digital platform. This innovative digital solution will facilitate communication between healthcare providers, patients, and caregivers. PCCPs are tailored plans for the individual patient, based on clinical data such as stage of disease, treatment intention, symptom burden, patient needs and preferences. The novelty aspect is the complete inclusion of the patient perspective that complements clinical data on anticancer treatment, the effects of the disease, and the side effects of the treatment.<\/p>\n

MyPath encompasses two innovative approaches: the first is the development of digital PCCPs and the second is the implementation and use of these PCCPs in clinical practice using implementation science methodology. Project results will be disseminated at all levels of society using a top-down and bottom-up strategy involving policy makers, major stakeholders, professional organisations, the medical industry, patient associations, NGOs, and the educational sector. Universal uptake and use of the pathways will ensure that patient-centred care becomes a fully integrated part of cancer care.<\/p>\n

MyPath is led by Prof. Stein Kaasa from the Oslo University Hospital\u2019s Department of Oncology and Marie Fallon, head of the Palliative and Supportive Care group at the University of Edinburgh. This pan-European consortium (14 partners) involving clinicians, researchers, companies, and patient and professional associations will co-create digital patient-centred care pathways and implement them in nine cancer centres in eight European countries.<\/p>\n

Follow the progress of MyPath at <\/em>mypath-cancercare.eu<\/em><\/a> and on Twitter <\/em>@MyPath_EU<\/em><\/a> to stay up-to-date with the latest results and events.<\/em><\/p>\n

MyPath plaseaz\u0103 nevoile \u0219i valorile pacien\u021bilor cu cancer \u00een prim-planul traiectoriei lor de \u00eengrijire<\/p>\n

\u00cen practica actual\u0103 din Europa, \u00een cadrul \u00eengrijirii cancerului, accentul principal este pus pe tratarea tumorii. Cu toate acestea, planul optim de \u00eengrijire pentru un anumit pacient este determinat \u0219i de al\u021bi factori dec\u00e2t cei medicali \u0219i, prin urmare, variaz\u0103 de la o persoan\u0103 la alta. Cercet\u0103rile \u00een domeniul \u00eengrijirii paliative \u0219i de suport au demonstrat beneficiile includerii unei abord\u0103ri de \u00eengrijire centrate pe pacient, cu o mai mare implicare a acestuia \u00een deciziile privind tratamentul s\u0103u. Cu toate acestea, aceste dovezi nu au fost integrate \u00een mod sistematic \u00een oncologie.<\/p>\n

MyPath este un nou proiect de cercetare finan\u021bat de UE (acord de grant nr. 101057514), cu participarea mai multor p\u0103r\u021bi interesate, care are ca scop integrarea \u00eengrijirii centrate pe pacient \u00een \u00eengrijirea de rutin\u0103 a cancerului prin dezvoltarea unor traiectorii digitale inovatoare de \u00eengrijire centrat\u0103 pe pacient (PCCP), configurate pe o platform\u0103 digital\u0103 u\u0219or de utilizat. Aceast\u0103 solu\u021bie digital\u0103 inovatoare va facilita comunicarea \u00eentre furnizorii de asisten\u021b\u0103 medical\u0103, pacien\u021bi \u0219i \u00eengrijitori. PCCP sunt planuri personalizate pentru fiecare pacient \u00een parte, bazate pe date clinice precum stadiul bolii, inten\u021bia de tratament, povara simptomelor, nevoile \u0219i preferin\u021bele pacientului. Noutatea const\u0103 \u00een includerea complet\u0103 a perspectivei pacientului, care completeaz\u0103 datele clinice privind tratamentul anticancer, efectele bolii \u0219i efectele secundare ale tratamentului.<\/p>\n

MyPath \u00eenglobeaz\u0103 dou\u0103 abord\u0103ri inovatoare: prima este dezvoltarea de PCCP digitale \u0219i a doua este implementarea \u0219i utilizarea acestor PCCP \u00een practica clinic\u0103, utiliz\u00e2nd metodologia \u0219tiin\u021bei implement\u0103rii. Rezultatele proiectului vor fi diseminate la toate nivelurile societ\u0103\u021bii prin intermediul unei strategii de sus \u00een jos \u0219i de jos \u00een sus, implic\u00e2nd factorii de decizie politic\u0103, principalele p\u0103r\u021bi interesate, organiza\u021biile profesionale, industria medical\u0103, asocia\u021biile de pacien\u021bi, ONG-urile \u0219i sectorul educa\u021bional. Adoptarea \u0219i utilizarea universal\u0103 a PCCP vor asigura faptul c\u0103 \u00eengrijirea centrat\u0103 pe pacient va deveni o parte pe deplin integrat\u0103 a \u00eengrijirii oncologice.<\/p>\n

MyPath este coordonat de profesorul Stein Kaasa de la Departamentul de Oncologie al Spitalului Universitar din Oslo \u0219i de Marie Fallon, liderul grupului de \u00eengrijire paliativ\u0103 \u0219i de suport de la Universitatea din Edinburgh. Acest consor\u021biu paneuropean (14 parteneri), care implic\u0103 clinicieni, cercet\u0103tori, companii \u0219i asocia\u021bii profesionale \u0219i de pacien\u021bi, va crea \u00eempreun\u0103 traiectorii digitale de \u00eengrijire centrate pe pacient \u0219i le va pune \u00een aplicare \u00een nou\u0103 centre oncologice din opt \u021b\u0103ri europene.<\/p>\n

Urm\u0103ri\u021bi progresul MyPath la mypath-cancercare.eu \u0219i pe Twitter @MyPath_EU pentru a fi la curent cu cele mai recente rezultate \u0219i evenimente.<\/p>\n","protected":false},"excerpt":{"rendered":"

MyPath puts cancer patients\u2019 needs and values at the forefront of their care trajectory \u00a0In current practice in Europe, the primary focus of cancer care is to treat the tumour. However, the optimal care plan for a particular patient is also determined by factors beyond medical ones and therefore varies from person to person. Research […]<\/p>\n","protected":false},"author":431,"featured_media":4695,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[996],"tags":[],"_links":{"self":[{"href":"https:\/\/www.paliatia.eu\/new\/wp-json\/wp\/v2\/posts\/4378"}],"collection":[{"href":"https:\/\/www.paliatia.eu\/new\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.paliatia.eu\/new\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.paliatia.eu\/new\/wp-json\/wp\/v2\/users\/431"}],"replies":[{"embeddable":true,"href":"https:\/\/www.paliatia.eu\/new\/wp-json\/wp\/v2\/comments?post=4378"}],"version-history":[{"count":8,"href":"https:\/\/www.paliatia.eu\/new\/wp-json\/wp\/v2\/posts\/4378\/revisions"}],"predecessor-version":[{"id":4694,"href":"https:\/\/www.paliatia.eu\/new\/wp-json\/wp\/v2\/posts\/4378\/revisions\/4694"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.paliatia.eu\/new\/wp-json\/wp\/v2\/media\/4695"}],"wp:attachment":[{"href":"https:\/\/www.paliatia.eu\/new\/wp-json\/wp\/v2\/media?parent=4378"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.paliatia.eu\/new\/wp-json\/wp\/v2\/categories?post=4378"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.paliatia.eu\/new\/wp-json\/wp\/v2\/tags?post=4378"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}